Waiting for OHSU...

Even though today didn't yield much change for the twins, the doctors may be onto something. Their metabolic investigation showed a potential intolerance for protein - one that resulted in elevated levels of ammonia in both their systems. Ammonia in high levels can be toxic to the brain and creates lethargy and hypotonic behavior - very similar to the twins behavior. Currently, the twins are on a protein-free IV drip - which seems to be curtailing the ammonia issue.

Additionally, Providence sent bloodwork to OHSU for further metabolic analysis - and we hope to hear from them in the next day or so. If it turns out they need a special diet to fit their possible metabolic disorder - they may need to be relocated to OHSU for a spell. Ugh. Well....at least they would be closer to us.

During our visit today (after we dropped Greer w/his aunt Dianne), we were able to hold both of them for a short time. Alex and I switched back and forth - talking softly to them about our day - how their big brother Greer misses them - and how we look forward to taking them home when they are feeling better. The nurses seem to think they are more responsive than yesterday - and they did a fair amount of shifting, pushing and moving around....so, that was encouraging.

We'll be back tomorrow...